Showing posts with label Wellspring. Show all posts
Showing posts with label Wellspring. Show all posts

Thursday, July 8, 2010

Wandering a path not always easy

   I just came in from struggling, straddling  and sweating my cargo roof rack into place on top of the van. Frig, it's hot out there! I am quite proud of myself for getting it up there though. I thought I would have to get some help to hold it in place while I screwed the bolts on (we shall see how good a job I did when I drive down the road - don't drive behind me as I drive over any bumps!). I did it all by my little ole self though, with no help, but an occasional breeze to keep my morale up.

   As I wiped the sweat off my brow, I stood back to admire my handy-work. I could not help but think back to  a lady I know, who is going through a difficult period in her life. I believe she is in her late 60s and her husband apparently is in the process of beginning a cancer journey. They have yet to give a formal title to the kind of cancer he has, but there is a tumour floating around by his kidneys that is approximately 3-5" large. Not mm or cm, but INCHES! For one not familiar to tumours and their size, that is huge; about the size of an orange. I have mentioned at various points in my blog some of the trials I have traversed in my own life with cancer. It is not a pleasant disease and it affects many, many people in the world. 

   Why I think of this lady today, as I claim triumph over a difficult task, is because she is very dependant on her husband. She has a driver's license, but generally does not feel comfortable driving any real distance. She can clean, but cooking is not a skill that she can claim with any true sense. As meal time approached recently, she suggested that she would make dinner (a simple meal of barbequed hamburgers). Someone commented that she would have to start the barbeque and she retorted "oh well, I can't do that! You better do it G." I was floored. She could not even start the barbeque! Perhaps she is not comfortable handling propane, but really it is a fairly straight forward task. What is she going to do if her husband dies? We all die, but with his failing health, one would assume he will succumb sooner rather than later. She is even afraid of confined spaces (elevators to be exact) and worries about what she is going to do if he is admitted to hospital for surgery and is up on the fifth floor for recovery. How will she get up to the fifth floor? At said point, I am aghast.

   Over the course of the cancer journey that I went on with my husband and grief journey I have struggled with since he died, I have had many challenges. Understanding diagnoses, assisting him in his mobility, undertaking more household chores when he was unable were all things that I just did, because I had to. I did not want to, but I did not have a choice. Well, that is not exactly right, as my Mother pointed out to me at points. Another choice could have been to walk away, but that would never have happened. To me it was not a choice. She pointed out the strength it took to be there for my family, that some just do not have. Since my husband died, I have taken on all the cooking, cleaning, bill payments and general running of my household. Again, I have not wanted to do it all and at points was very close to throwing it all away, but somehow I have found deep reserves of strength to push me through. My house is not cleaned as often as some, but I pay my bills on time and make most of our meals from scratch. I do it because I have to. Again, there is always the option to leave, which to me is a non-option. I have a certain level of pride in the fact that I go beyond the mundane chores and accomplish other tasks that need attending to. I painted my living room in the winter mostly by myself. When I had my basement renovated the winter before, I again did all the painting. I have organized having the furnace  and hot water heater replaced, a shed built, and every room in the house (but my bedroom) painted. I have lifted furniture on my own muscle, when I perhaps should have asked for help, but am learning that I do not have to always do it all solo. For me it is not a matter of knowing how to do something, it is more a matter of knowing that I cannot do everything and stepping back to allow others to do what I cannot. There is no glory in being a martyr, I have been told in not so many words. 

   So when I look at this woman, who will be in such a disastrous place when her husband dies, I feel a certain level of anger, confusion and disbelief. I have wished and wanted someone to be there for me to help with running my household, spending quality time with and enduring this thing called life. I am sure that someone will enter my life at some point, that I will want to share and care with. I am learning to like and love me and respect my abilities and weaknesses. Really though, I am content to spend time with me, getting to know me and my path. I would love to have more companionship, but I do not need someone to survive. That level of dependence is scary for me and I just cannot fathom it. I had someone ask me if I had talked to this woman directly, and admitted I had not. In crisis, you survive as best you can and she seemed to be pulling back from her usual outgoing self. I could not and did not want to put myself out there and tread in my own recent memories. I cannot change her world. She will have to survive it the best she can and all I can offer her is the strength to face the day. 

   I realize I have gone on here, but just want to offer a link to a support system that has buoyed me up over the years for any of you challenged by a cancer diagnosis. Wellspring is a wonderful organization that offers emotional support to individuals, family and friends of anyone dealing with cancer. It is a Canadian organization that has branches all across the country and I have utilized their services often. I have not always been as strong as I am today, but they have been there to hold me up whenever I have had a need. As I have trudged a cancer path, I know how difficult it can be. Any of you that need an ear are always welcome to chat. Peace to you all.


Thursday, February 4, 2010

for all that changes, we stay the same

   So, after a few days being tied to the house I have been set free for a day. Little R is riding the motrin wave and flying high. In fact, she was up at 6:30 this morning. Very unseasonable for a little girl who usually peeks out from under her covers closer to 7:45 ish. My girls appreciate sleeping in. I like that, as so do I. She cuddled for a little bit, then tired of trying to lie still and quiet, as Mommy pretended to drift back to sleep. It didn't really happen. She did eventually head off in search of the TV though. Bad Mommy tucked back under snuggly warm blankets and tried to remember where I was in my dream. Ack, day has begun...
   When I did eventually rise, the sun was streaming in through the windows. It looked like a beautiful morning, that deserved embracing. Sniff. Motivation just not up to snuff yet though. After dosing everyone with their morning meds, we headed out to face the day. Despite complaints from R that she wanted another medicine and tears that she wasn't getting it, we left the house. I expected her to attach herself to my leg at Daycare, after spending the last two days with me, but she entered the room with her regular smiles. Kisses goodbye and the day was mine!
   The day is mine. Sigh. Now the clouds have reformed. Oh well. I saw an old friend at my new yoga class this morning, but missed my other class terribly. Hugs to you Randolph! A nice treat was tea and cookies afterwards though. It was a lovely social setting that I appreciated. Wellspring truly is a magical place. I pray you don't, but if you ever have need it is a wonderfully supporting place. At times I have wondered whether it truly was the place for me, but any time I question I get a resounding "YES" from any and all. The people that walk through their doors have seen such adversity and yes, I am one. I have lived through a cancer journey. I may not have had the disease myself, but as caregiver I have permanaently been painted as well. For some reason it has been weighing with me again this last little while. Oh gray skies! Just blow away already! I need some sunshine in my soul. Pleasant activities in the next little while should help. Dinner with friends after swimming, a playdate tomorrow and birthday party on the weekend. Smiling children tend to rub off on you. Here's hoping
   I am anticipating responses, so send out big thank yous to "me", R and L. Knowing that friends are out there and caring makes the day a little brighter.
Namaste

Monday, January 18, 2010

What You Can do to Help

    Last night I was chatting with a friend of mine on Facebook. She knows that we battled cancer in our household and asked if she could ask me a question. "Question away", I said. Well she had a friend who had been recently diagnosed with cancer and was in the beginning throes of the chaos that a cancer diagnosis brings. I am a member of Wellspring and often spout the benefits that I have reaped from this wonderful place. If you have never heard of it, it is a cancer support centre that offers emotional support to those in need. It offers many programs to its members and is free to anyone who has cancer, is a caregiver or friend of someone dealing with cancer. They have been a lifeline to me in my journey the last few years. She was asking me about what exactly they offer and what I knew about children's programs for families dealing with cancer. Ultimately what she wanted to know was "how can I help?". She, like so many others, is afraid of saying something wrong. The unfortunate part of that is that often people just back up and leave you alone, for fear of making you upset. That, in my opinion, is exactly the wrong thing to do. Imagine yourself being faced with a life changing/challenging/threatening disease and having surgery/chemotherapy/radiation thrown at you in a short period of time. Once diagnosis has been made, speed is of the essence and there is no time to sit back and analyse what this means to you and how you feel about it. Seemingly the rest of your life is asked to be put on hold, so that you can tackle the disease. This can become your life. Everything else takes a back seat. It is different and scary and makes you feel alone. This is not a time when you want people to abandon you. You may not be able to fix the problem that is rearing its ugly head, but you can still do something.  I wanted to share the chat I had last night, but unfortunately  lost it. Then I remembered that many moons ago I pondered what was beneficial for me when I was going through the crisis of cancer. I thought I would share those thoughts with you here. Make of them what you will and take whatever you need to;

What You Can do to Help

  • Listen

  • Offer hugs, compassion, empathy

  • Food

    • it is the last thing one worries about when dealing with a crisis, but important

  • Shovel snow

  • Cut grass

  • Don't be afraid to ask questions, even if they seem odd or dumb
    • it is my life however chaotic and your interest is better than pretending nothing is going on and nothing is wrong (EVERYTHING is WRONG!)
  • Help with babysitting if appropriate or visit with the sick person so the caregiver can get a break
  • Keep calling and keep offering
    • some days I am stronger than others and some days I might need more than I've got
  • Offer to go to doctor appointments, so the caregiver can get a break
  • Offer help with picking up medication, groceries or going to a class together (ex. yoga, meditation), even doing the laundry might help
  • Make some days "normal" just by visiting, going for coffee or a drink
    • normal is gone, but stability is desperately sought after
I then highlighted in my little book important people to me and why they had been important. I guess it won't hurt to share that either.

My Important People were
  • Cris (close girlfriend with children similar age)  - babysitting, playdates (normal), talking about anything, asking questions, Hugs
  • Kerry (out-of-town sister)  - daily phone calls and love, listening, visits during crisis with meal making
  • Mom (out-of-town) - empathy, love, offering personal insights from her experience (my Father also died from cancer when she had two girls under 5 years of age), regular visits, presence during crisis, meals, laundry, "normal" phone calls
  • Carole (yoga teacher and cancer survivor) - asking questions, empathy, sharing personal experiences
  • John (friend) - help with painting, listening, offering love
  • Jim (husband's co-worker and friend) - regular calls and visits, help with household projects, smiles, love
  • Neighbours - friendly smiles, encouragement, help with house maintenance (raking leaves, snow shovelling, coffee/drinks)
  • Wellspring - listening, sharing experiences, hugs, safe spot to cry, remind me of loving kindness to self
  • Daycare - child minding, help in crisis, listening
This list is not comprehensive, but is what struck me at the time. Some of these people were helpful before and/or after Brad died. I share just to give examples of what might help. I also thought this might be more interesting than my fair of the last week. Be well my friends.

LinkWithin

Related Posts with Thumbnails